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Author Archives: Team Captain
Where are you now, Rock Hudson?
Are you wondering who is Rock Hudson? Do you think I have lost my mind? Well ….. Since my son Steven’s diagnoses with Stage Four Osteosarcoma over 7 years ago, followed by a diagnosis of Secondary Acute Myelogenous Leukemia, which required … Continue reading
Posted in Childhood Cancer, Grandchildren, Grandparents, Pediatric Cancer
Tagged 50/50 Movie, Acute Myelogenous Leukemia, AIDS, AYA, Dynasty, Elizabeth Taylor, HIV, Linda Evans, NCI, NIH, osteosarcoma, PAYA, Rock Hudson, Sarcoma, SU2C, Taylor Swift
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Never ever capitalize cancer
May is Brain cancer Awareness Month. Each May, I think back to my first encounter meeting parents who had lost their children to brain cancer. It happened in Washington, DC during my very first congressional caucus on childhood cancer. In … Continue reading
Bear with me
I was a nurse for 29+ years and have loved the opportunities that I had to care for children with cancer during that time. Knowing the role of a nurse and what an emotional toll childhood cancer takes on children … Continue reading
Palliative Care – Misunderstood
Recently, the National Institutes of Health (NIH) announced it’s support for palliative care (pronounced pal-lee-uh-tiv) for adults and children suffering from serious illness. To be honest, for a long, long time, I always associated palliative care with death, dying and hospice. Many of the services offered under … Continue reading
Posted in Childhood Cancer, Grandchildren, Grandparents, Pediatric Cancer, Uncategorized
Tagged American Cancer Society, Better Clinical Outcomes, Boston Children's Hospital, death, Dr. Joanne Wolfe, end of life, Get Palliatve Care .Org, hospice, National Cancer Institute, National Institutes of Health, NCI, neuroblastoma, NIH, The New England Journal of Medicine
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comPASSION
Eight years have passed since Grace, the granddaughter of Joe Baber, was nine years old when her little 16 month-old brother was diagnosed with high risk neuroblastoma. Next year, she enters college with a mission. It was 6 o’clock … Continue reading
Thank You, American Cancer Society
In the past, I have been a huge critic of the American Cancer Society and in September, I wrote a very inflamed blog about all that I felt was wrong with the American Cancer Society’s (ACS) involvement with childhood cancer. I believe … Continue reading
Posted in Childhood Cancer, Grandchildren, Grandparents, Pediatric Cancer
Tagged ACS, American Cancer Society, NCI, NIH
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Surviving
Max at age 10, grandson of Richard Plotkin and Conor at age 9, grandson of Joe Baber, are two of the slightly more than 400,000 childhood cancer survivors alive in the United States today. Imagine 400,000 survivors of childhood cancer! … Continue reading
Posted in Childhood Cancer, Grandchildren, Grandparents, Pediatric Cancer, Uncategorized
Tagged Acute Lymphocytic Leukemia, Acute Myeloid Leukemia, ALL, American Cancer Society, AML, Astrocytoma, Brain Tumor, cardiac disease, Central Nervous Syatem, chemotherapy, CNS, Cranial radiation therapy, cyclophosphamide, DIPG, Ependymoma, Ewing Sarcoma, Hodgkin Lymphoma, Medulloblastomia, Neoplasms, neuroblastoma, Non Hodgkins Lymphoma, osteosarcoma, Ovarian Germ Cell Tumors, radiation, Retinoblastoma, rhabdomyosarcoma, Testicular Germ Cell Tumors, Wilms tumor
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Motivated
I wish I never heard of The Coalition Against Childhood Cancer (CAC2) or of its members I know by their first names and their home States – Joe (Virginia), Tom (Pennsylvania) and Donna (Virginia). I wish I only knew Michael … Continue reading
Posted in Childhood Cancer, Grandchildren, Grandparents, Pediatric Cancer, Uncategorized
Tagged American Cancer Society, Annemarie Plotkin, CAC2, Chris Van Hollen, Coalition Against Childhood Cancer, Congressional Childhood Cancer Caucus, Creating Hope Act, David Plotkin, Donna Carmical, GIA, Lymphoma, Max Cure Foundation, Memorial Sloan-Kettering, Mike McCaul, NCI, NIH, President Obama, Richard O'Reilly, Richard Plotkin, The Nicholas Conor Institute, TNCI, Tom Pilco
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Never Ever Capitalize “cancer”
Originally posted on Four-Square Clobbers Cancer:
Every Year in September during the Childhood Cancer Summit and CureFest I remember five years ago, meeting Carson’s mother and Max’s grandfather. Richard Plotkin, a retired lawyer, read a book written by Annette Leslie’s,…
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Palliative Care
Recently, the National Institutes of Health (NIH) announced it’s support for palliative care (pronounced pal-lee-uh-tiv) for adults and children suffering from serious illness. To be honest, for a long, long time, I always associated palliative care with death, dying and hospice. Many of the services offered under palliative … Continue reading
Posted in Childhood Cancer, Grandchildren, Grandparents, Pediatric Cancer, Uncategorized
Tagged ACS, American Cancer Society, Dr. Joanne Wolfe, Get Palliative Care Org, High Risk Neuroblastoma, hospice, Joe Baber, National Cancer Institute, National Institutes of Health, NCI, New England Journal of Medicine, NIH, Pediatric Palliative Care, quality of life
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Grandparents In Action 