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Current Posts
- The false awareness of childhood cancer
- ‘Right To Try’ Is A Sham
- Reflections
- Lions, Soldiers, Children with Cancer, Lawyers, Congress, and a Christmas Miracle
- Be Informed Grandparents
- “Normal”
- This Gap is Big
- We’re in this together
- Words of Appreciation
- Fly Me to the Moon
- Giving back to those who give
- Creating Hope
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Tag Archives: NCI
Be Informed Grandparents
Once they have been told that their grandchild has cancer, the best thing a grandparent can do is get informed totally on the disease and all aspects of treatment. In this way, you can be very helpful to the child’s … Continue reading
Priorities
Editor’s Note: This past weekend a large group of people assembled outside of the National Cancer Institute to rally for more research funds for childhood cancer. This was written by one on the people whose grandchild died of cancer. She was … Continue reading
Where are you now, Rock Hudson?
Are you wondering who is Rock Hudson? Do you think I have lost my mind? Well ….. Since my son Steven’s diagnoses with Stage Four Osteosarcoma over 7 years ago, followed by a diagnosis of Secondary Acute Myelogenous Leukemia, which required … Continue reading
Posted in Childhood Cancer, Grandchildren, Grandparents, Pediatric Cancer
Tagged 50/50 Movie, Acute Myelogenous Leukemia, AIDS, AYA, Dynasty, Elizabeth Taylor, HIV, Linda Evans, NCI, NIH, osteosarcoma, PAYA, Rock Hudson, Sarcoma, SU2C, Taylor Swift
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Palliative Care – Misunderstood
Recently, the National Institutes of Health (NIH) announced it’s support for palliative care (pronounced pal-lee-uh-tiv) for adults and children suffering from serious illness. To be honest, for a long, long time, I always associated palliative care with death, dying and hospice. Many of the services offered under … Continue reading
Posted in Childhood Cancer, Grandchildren, Grandparents, Pediatric Cancer, Uncategorized
Tagged American Cancer Society, Better Clinical Outcomes, Boston Children's Hospital, death, Dr. Joanne Wolfe, end of life, Get Palliatve Care .Org, hospice, National Cancer Institute, National Institutes of Health, NCI, neuroblastoma, NIH, The New England Journal of Medicine
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Thank You, American Cancer Society
In the past, I have been a huge critic of the American Cancer Society and in September, I wrote a very inflamed blog about all that I felt was wrong with the American Cancer Society’s (ACS) involvement with childhood cancer. I believe … Continue reading
Posted in Childhood Cancer, Grandchildren, Grandparents, Pediatric Cancer
Tagged ACS, American Cancer Society, NCI, NIH
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Motivated
I wish I never heard of The Coalition Against Childhood Cancer (CAC2) or of its members I know by their first names and their home States – Joe (Virginia), Tom (Pennsylvania) and Donna (Virginia). I wish I only knew Michael … Continue reading
Posted in Childhood Cancer, Grandchildren, Grandparents, Pediatric Cancer, Uncategorized
Tagged American Cancer Society, Annemarie Plotkin, CAC2, Chris Van Hollen, Coalition Against Childhood Cancer, Congressional Childhood Cancer Caucus, Creating Hope Act, David Plotkin, Donna Carmical, GIA, Lymphoma, Max Cure Foundation, Memorial Sloan-Kettering, Mike McCaul, NCI, NIH, President Obama, Richard O'Reilly, Richard Plotkin, The Nicholas Conor Institute, TNCI, Tom Pilco
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Palliative Care
Recently, the National Institutes of Health (NIH) announced it’s support for palliative care (pronounced pal-lee-uh-tiv) for adults and children suffering from serious illness. To be honest, for a long, long time, I always associated palliative care with death, dying and hospice. Many of the services offered under palliative … Continue reading
Posted in Childhood Cancer, Grandchildren, Grandparents, Pediatric Cancer, Uncategorized
Tagged ACS, American Cancer Society, Dr. Joanne Wolfe, Get Palliative Care Org, High Risk Neuroblastoma, hospice, Joe Baber, National Cancer Institute, National Institutes of Health, NCI, New England Journal of Medicine, NIH, Pediatric Palliative Care, quality of life
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Grandparents In Action 