-
Current Posts
- The false awareness of childhood cancer
- ‘Right To Try’ Is A Sham
- Reflections
- Lions, Soldiers, Children with Cancer, Lawyers, Congress, and a Christmas Miracle
- Be Informed Grandparents
- “Normal”
- This Gap is Big
- We’re in this together
- Words of Appreciation
- Fly Me to the Moon
- Giving back to those who give
- Creating Hope
Archives
Search the GIA Site.
-
Like us on Facebook
Tags
- ACS
- Acute Lymphocytic Leukemia
- Acute Myeloid Leukemia
- Adenovirus
- Aimee Hardy
- Alexis Agin
- ALL
- American Cancer Society
- AML
- Annemarie Plotkin
- Astrocytoma
- Brain Tumor
- brincidofovir
- Brooke Gladstone
- CAC2
- cardiac disease
- Central Nervous Syatem
- chemotherapy
- Chimerix
- Chris Van Hollen
- CNS
- Coalition Against Childhood Cancer
- Congressional Caucus on Childhood Cancer
- Congressional Childhood Cancer Caucus
- Cranial radiation therapy
- Creating Hope Act
- cyclophosphamide
- David Plotkin
- DIPG
- Donna Carmical
- Dr. Joanne Wolfe
- Ependymoma
- Ewing Sarcoma
- FDA
- Get Palliative Care Org
- GIA
- Grandparents in Action
- Harvard Medical School
- High Risk Neuroblastoma
- Hodgkin Lymphoma
- hospice
- Joe Baber
- Jonathan Agin
- Josh Hardy
- Lymphoma
- Max Cure Foundation
- Max Plotkin
- medulloblastoma
- Medulloblastomia
- Memorial Sloan-Kettering
- Memorial Sloan-Kettering Cancer Center
- Mike McCaul
- National Cancer Institute
- National Institutes of Health
- Navy Seal
- NCI
- Neoplasms
- neuroblastoma
- New England Journal of Medicine
- NIH
- Non Hodgkins Lymphoma
- osteosarcoma
- Ovarian Germ Cell Tumors
- Pediatric Palliative Care
- President Obama
- quality of life
- radiation
- Retinoblastoma
- Richard O'Reilly
- Richard Plotkin
- Roar Beyond Barriers
- St. Jude
- The Nicholas Conor Institute
- TNCI
- Tom Pilco
Tag Archives: American Cancer Society
“Normal”
From my 11 year-old grandson’s perspective, he (Conor) has always had a somewhat “normal” childhood. He lives in sunny California, enjoys, and is good in school. He loves mountain biking and surfboarding with his father. He’s become a real cool, cotton-topped … Continue reading
Posted in Cancer, Childhood Cancer, Grandchildren, Grandparents, Pediatric Cancer, Rare Disease, Uncategorized
Tagged American Cancer Society, Beth Anne Baber, Childhood Cancer Awareness Week, Congressional Caucus on Childhood Cancer, Conor Boddy, CureFest, Ellie Baber, Joe Baber, Lafayette Park, neuroblastoma, Nick Boddy, The Nicholas Conor Institute, The White House
2 Comments
Palliative Care – Misunderstood
Recently, the National Institutes of Health (NIH) announced it’s support for palliative care (pronounced pal-lee-uh-tiv) for adults and children suffering from serious illness. To be honest, for a long, long time, I always associated palliative care with death, dying and hospice. Many of the services offered under … Continue reading
Posted in Childhood Cancer, Grandchildren, Grandparents, Pediatric Cancer, Uncategorized
Tagged American Cancer Society, Better Clinical Outcomes, Boston Children's Hospital, death, Dr. Joanne Wolfe, end of life, Get Palliatve Care .Org, hospice, National Cancer Institute, National Institutes of Health, NCI, neuroblastoma, NIH, The New England Journal of Medicine
Leave a comment
Thank You, American Cancer Society
In the past, I have been a huge critic of the American Cancer Society and in September, I wrote a very inflamed blog about all that I felt was wrong with the American Cancer Society’s (ACS) involvement with childhood cancer. I believe … Continue reading
Posted in Childhood Cancer, Grandchildren, Grandparents, Pediatric Cancer
Tagged ACS, American Cancer Society, NCI, NIH
Leave a comment
Surviving
Max at age 10, grandson of Richard Plotkin and Conor at age 9, grandson of Joe Baber, are two of the slightly more than 400,000 childhood cancer survivors alive in the United States today. Imagine 400,000 survivors of childhood cancer! … Continue reading
Posted in Childhood Cancer, Grandchildren, Grandparents, Pediatric Cancer, Uncategorized
Tagged Acute Lymphocytic Leukemia, Acute Myeloid Leukemia, ALL, American Cancer Society, AML, Astrocytoma, Brain Tumor, cardiac disease, Central Nervous Syatem, chemotherapy, CNS, Cranial radiation therapy, cyclophosphamide, DIPG, Ependymoma, Ewing Sarcoma, Hodgkin Lymphoma, Medulloblastomia, Neoplasms, neuroblastoma, Non Hodgkins Lymphoma, osteosarcoma, Ovarian Germ Cell Tumors, radiation, Retinoblastoma, rhabdomyosarcoma, Testicular Germ Cell Tumors, Wilms tumor
Leave a comment
Motivated
I wish I never heard of The Coalition Against Childhood Cancer (CAC2) or of its members I know by their first names and their home States – Joe (Virginia), Tom (Pennsylvania) and Donna (Virginia). I wish I only knew Michael … Continue reading
Posted in Childhood Cancer, Grandchildren, Grandparents, Pediatric Cancer, Uncategorized
Tagged American Cancer Society, Annemarie Plotkin, CAC2, Chris Van Hollen, Coalition Against Childhood Cancer, Congressional Childhood Cancer Caucus, Creating Hope Act, David Plotkin, Donna Carmical, GIA, Lymphoma, Max Cure Foundation, Memorial Sloan-Kettering, Mike McCaul, NCI, NIH, President Obama, Richard O'Reilly, Richard Plotkin, The Nicholas Conor Institute, TNCI, Tom Pilco
2 Comments
Palliative Care
Recently, the National Institutes of Health (NIH) announced it’s support for palliative care (pronounced pal-lee-uh-tiv) for adults and children suffering from serious illness. To be honest, for a long, long time, I always associated palliative care with death, dying and hospice. Many of the services offered under palliative … Continue reading
Posted in Childhood Cancer, Grandchildren, Grandparents, Pediatric Cancer, Uncategorized
Tagged ACS, American Cancer Society, Dr. Joanne Wolfe, Get Palliative Care Org, High Risk Neuroblastoma, hospice, Joe Baber, National Cancer Institute, National Institutes of Health, NCI, New England Journal of Medicine, NIH, Pediatric Palliative Care, quality of life
Leave a comment
Grandparents In Action 